So much of what we write about is support- from new babies through childhood to teens, and all to get to this point- adulthood- with as much confidence and belief in our abilities as the next person.

Our road has probably been tougher, it will certainly have been more challenging, but probably no more than many others have had to face, and without the technical advancements in surgery we have, they may have to continue living with their challenges for the rest of their life.

So it’s about moving on, achieving everything you’ve ever wanted to and hopefully putting something back to helping those kids just starting out.

We have many successful adults who have remained linked to our organisation and who have some wonderful life stories to share and inspire.

The years to come