Cleft NZ Inc Privacy Policy

We collect personal information from you, including information about your: 

  • name; 
  • contact information; and 
  • interactions with us. 

We endeavour to only collect personal information we deem necessary for effective and efficient interaction with you. 

We collect your personal information in order to: 

  • communicate with you about our services; 
  • support people affected by cleft lip/palate in New Zealand; and 
  • raise awareness of cleft lip/palate in New Zealand. 

Providing some information is optional.  If you choose not to enter your contact details, we’ll be unable to get in touch with you. 

We keep your information safe by storing it in a secure data storage service and only allowing our staff/volunteers to access it who have signed our confidentiality agreement. 

If you do not wish us to contact you, please contact us on the details below or use the “unsubscribe” link located at the bottom of our email communications. 

We try to collect personal information directly from you (unless it is unreasonable or impractical for us to do so).   We take reasonable steps to keep your personal information accurate and up to date.   

We may disclose your personal information to third parties as required (e.g. an IT service provider).  We take all reasonable steps to ensure that these third parties have in place relevant confidentiality and privacy agreements. 

We will not rent, exchange or sell mailing lists of our members to other organisations. 

We may collect information via our website.  If you wish to remain anonymous when visiting our website, please disable the cookies on your internet browser settings. 

You have the right to ask for a copy of any personal information we hold about you, and to ask for it to be corrected if you think it is wrong.  If you’d like to ask for a copy of your information, or to have it corrected, please contact us at or by phone on 0800 425 338 or by post to PO Box 13385 Onehunga Auckland.